Monday, September 23, 2013

At least I can walk....


There are many with this issue that can not walk. I was there for a short period of time. I would never wish that on anyone! I mean holy crap my husband fed me Wendy's and Oreos! My husband is pretty amazing. But for real that was my diet. He wheeled in the computer and made sure I had a phone, remote and all the food from the menu. Yesterday I walked around downtown I thought how lucky am I? Even though I was uncomfortable and in slight agony I could still do it. A little slower than most but still moving along. Now I wake up today and I'm completely stiff. Okay just a little stiff and I'm supposed to go pick tomatoes with my grandma. Yikes.
On a side note my memory is shot! Holy crapola! So the other day a coworker listed off to me things I said but I don't remember ever saying any of it. It was in so much detail! I mean it was all true but it was stuff even I forgot about. Yowza! I mean people could really fuck with me if they knew only letting few days go by would give me short term Alzheimer's.
well gotta call the grams.

Wednesday, September 18, 2013

End of the Road


Doctors visit was a bit harsher than most. Doctor basically told me that he has done everything he can. He can't fix me he can only help me maintain. I knew that going in, he was only going to make me as good as he possibly could and try to maintain. He did help me. He did help me walk straighter and move more. He helped most of the pain reduce. However, its still there. Its never gonna go away.
So guess what? He is referring me to a neurologist or a surgeon I forgot which because my husband was the one talking with him. I was pretty upset because it just sounded like my doctor was giving up on me. Even though he was not giving up he was just stating that he has gotten me as far as he can. I am so glad my husband was there because I was in tears hearing this and I couldn't focus on the options for the referrals he was giving me.
I just thought there were more options and maybe he is not the one who has those for me. I am still fairly new to all this so I am trying to figure it all out. Meeting with other doctors I feel doctor is like, "yeah a legit patient,you have something wrong with you, I WANT all your money" and they are just trying to get in before another doctor dives in. It already costs so much and now I have to decide what I want to do and which path is right for me. I just know everyone is going to try and sell me on their ideas of what is best for me. I wish doctors would be as straight for was as my current doctor. He told me from the beginning he can help me he can't fix me but he would try everything he could to make me feel better. He did. I just worry I am going to choose the wrong thing going forward.
I hope it doesn't mean this is the end of the road.

Monday, September 16, 2013

As normal as it gets and potatoes


Since the last post I found out I still have a job and why I got a headache. My physical therapist stated it was something he does with my head. He gives me a massage on my head and it could be from that.
So I guess with my back this is as normal as I'm gonna get.... I see my doctor again tomorrow. I have a feeling he is going to shoot me up and just refill my scripts. This makes me sad. I don't like living like this and its not getting better! Last night I had to wake up pop pills and exercise and stretch to be able to go back to sleep. I woke up from my sleep saying, " no, no, no, no, no, no..." My husband was just like its okay your back just hurts. So I slowly got out of bed and did my thing. Everything was so tight. .....and speak of the devil the husband just texted me how my back was feeling.
I had a realization as to how old my body actually is this past week as well. My little 78 year old grandmother gets these giant bags of potatoes from this farm every year. They are so super cheap. Well she gets at least one bag per family and she stopped by to drop some off for me. When she came she wouldn't let me lift the bags. So here's my little ol'granny wobbling carrying this bag of potatoes into my garage. So sad she could lift it without having a problem and if I did that I'd be laid up the next day or later in the evening. 78 people she is 78!!! ....now she is not perfect she had her knees replaced and such but she is good....ugh 78 beating a 31 year old in lifting.

Monday, September 9, 2013

Feeling a bit down



So due to some of my medications side effects I've recently been getting some migraines. The migraines are like once a month so not too often however they do effect work. This last time I had one I had to call off work. Which in one of my posts I explain a point system most companies use. Well I believe that my points are up. Currently I'm waiting for a call from my boss. Basically I have no points left and I'm pretty sure they are going to let me go. I'm not sure if its worth a fight to claim FMLA or ADA. So now I'm feeling a bit down. I really did not realize what was going on with my attendance points. I hadn't had it laid out for me to know exactly what I had or didn't have.
I mean silver lining is the day I came back from medical leave or at least the first month everyone was happy to see me...after that no one really cared too much. I have only had one person that has been a constant friend like coworker. My "team" never includes me in anything and all but one coworker forgot my birthday. Even though it is on our individual calendars. So it's not like it was a super awesome place to work. It just seems like before I left everyone was awesome and loved me...that's just been depressing lately at work to come into this type of environment. Also, because I work a smaller shift than normal....I am scheduled at the busiest time of the day which is ridiculous. The number one reason I stay is for my insurance. I need my insurance in order to survive with this ill disease. Ah well I suppose that's enough venting and moping for one afternoon. If I don't get a call I guess I'll be going in on Wednesday to get fired 😞

Bye for now